Vent Sesh Update + Prayers Needed

September 19, 2012

I recognize that many of the Vent Sesh posts can be heavy, emotional or seemingly ask for comments or well wishes (by the way, they never are). The idea of a Vent Sesh — one of the core differentiators of TAGG and something so incredibly so close to my heart — is recognizing that women have many more issues beyond finding a fabulous necklace (though I do want all in yesterday’s post!), finding a solution to get out a stain or how best to affordable decorate our home.

Vent Sesh recognizes that as women we have shit going on all the time that we don’t talk about, don’t feel like we have someone to talk with or someone that can relate. We all have it, to one extent of the other. Just so happens that my past two years has been a good breeding ground for emotional topics!

Why bring this up now?

Last night at 11 pm I got an email that had me purging tears faster than I could control. Someone contacted me because her close friend, and a mother of a 20-month old, likely has NMO (neuro myeletis optica), what they initially thought I had two years ago. I instead have transverse myelitis, similar except the former can result in blindness. At this moment, this girl is laying paralyzed in a hospital bed just as I did and not knowing her fate and all I can do is muscle the strength to mention her in this forum so we can all send a little (or big!) prayer her way. We all deserve little prayers, and this seems like a good opportunity to send a collective one to a girl who really needs our support. Just like we’d do for any of us.

Because her friend asked me to share any past posts that she could read to understand my diagnosis, and possibly share with her friends, I thought this could be a good opportunity to share some Vent Sesh posts — not just about my illness — that have been impactful in one way or the other. I recognize that some of these older ones might have been written when about three people read my blog! I also encourage you to read the comments of the many brave women who shared their stories with TAGG.

Making the Good Positive Again (details about my illness) || Stop Asking Questions  ||  Friendships Worth Fighting For ||  Babies || Material Consumption || My Secret BFF || Loneliness || Weight (my story)

 

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  • http://twitter.com/PPFGirl PennyPincherFashion

    I am praying right now for this girl – such an awful thing to have happen & hopefully you can bring some comfort and inspiration to her & the family! xoxo

    • http://twitter.com/AvgGirlsGuide The Avg Girl Guide

      Thank you so much. Such an awful thing, especially when it comes on out of nowhere. Appreciate the prayers!

  • http://melaniestylereflection.blogspot.com/ Melanie R

    Sending prayers her way! Hugs!

    • http://twitter.com/AvgGirlsGuide The Avg Girl Guide

      Thank you, Melanie!!

  • http://twitter.com/LolaBlue_EB Erika Batista

    Sending prayers. This touched my heart.I will go back and read the past posts xo

    • http://twitter.com/AvgGirlsGuide The Avg Girl Guide

      Really appreciate the prayers, Erika!! Every little bit helps… hope you enjoyed the past Vent Sesh’s too.

  • Grace

    Oh wow… sending thoughts & prayers her way… how awful.

    • http://twitter.com/AvgGirlsGuide The Avg Girl Guide

      Thanks, Grace! Totally awful, and recall how hard it is for everyone involved… not knowing fate especially with a little one involved. So appreciate your prayers.

  • http://www.bestofbklyn.com/ bestofbklyn

    Will definitely keep her in my prayers, so sad to hear. Sending virtual hugs!

    • http://twitter.com/AvgGirlsGuide The Avg Girl Guide

      Thanks so much, Brooklyn. It definitely helps!

  • http://shabbychicandcheap.com/ Marissa

    Sending prayers up for her and her family.

    • http://twitter.com/AvgGirlsGuide The Avg Girl Guide

      You’re the best. Thanks, Marissa.

  • Tracy

    Sending lots of prayers – I can’t imagine what she and her family are feeling right now. xoxo

    • http://twitter.com/AvgGirlsGuide The Avg Girl Guide

      Thanks so much, Tracy! Totally awful… all these prayers really help. xo

  • http://www.facebook.com/karrie.smith3 Karrie Smith

    Today I took the time to REALLY read your blog. I subscribed about a month or so ago, but haven’t taken the chance to go back to the beginning. I really appreciate your honesty and openness about your life. I’m a nurse, so I understand the processes that you need to go through. I’m glad you are a survivor, although you probably don’t feel like that at times. I also read what the disease has done to your body and what it’s unable to do now. How I feel right now, is that there’s a hurt in my heart and I wish I could take it away for you or help some how, but I can only post an awkward response, and I wish I could give you a big hug instead :/ I never heard of those two conditions, or have run into a patient that has had it. I understand what is going on physically and some of the devastating effects that can happen, and how the patients I have taken care of have felt when going through similar conditions. I cannot relate to how you feel, because I haven’t gone through something like this, although I know it’s something that you have to deal with constantly. I also posted on your “Weight” post, so that may explain some things about me better if you wanna look. I will be praying for this little girl and praying that she will not lose the gift of sight and for her to completely recover. I will definitely be keeping you in my thoughts and prayers, and maybe there will be something in the near future to make things easier from what your disease has done. I can’t believe the botox works (helps)! I would have never thought that! I can relate to some of the grieving feelings you are going through, although our situations are completely different. Thank you so much for your posts, they really touched my heart. I look forward to reading about what happens next :)

    • http://twitter.com/AvgGirlsGuide The Avg Girl Guide

      Karrie: wow, thank you for your heartfelt response and compassion. It’s definitely challenging and something so unexpected and scary. Like you said, as a nurse if you’ve never seen it there’s a lot of others in the medical profession who are the same yet trying to deal with her/my diagnosis. Thanks so much for keeping her in your prayers!!

  • Amie

    Thanks for sharing the hard stuff. I will be praying for this mom and look forward to reading how she is doing in the future.

    • http://twitter.com/AvgGirlsGuide The Avg Girl Guide

      Thank you, Amie. It’s never easy so having others thinking about you always makes a difference. REally appreciate it!

  • Andria

    Sending lots of prayers and strength her way. And all our ways! We can always a bit of positive thoughts/prayers in our lives! xo

    • http://twitter.com/AvgGirlsGuide The Avg Girl Guide

      Andria: couldn’t agree more! It can never hurt. Really appreciate it! xo

  • Kara

    I’ve been reading your blog for several months now and never realized that you have TM. I was diagnosed with NMO about six years ago when I slowly started to lose vision in both eyes. When I finally got in to see a doctor who was able to treat me, I couldn’t read the HUGE letters at the top of the eye chart. Needless to say, it was a very scary time in my life. I was super lucky and after treatment (yay plasmapheresis!), my vision returned to 20/20. I’m on daily medication, and I consider it my miracle drug because I haven’t had another attack. I will be praying for the girl you mentioned in your post. Although I can only imagine what it’s like to experience paralysis, I assume it’s terrifying. I hope that her doctors are able to come up with an effective treatment plan, and no matter what happens, I pray that she’ll stay strong during these very difficult first months as she processes her diagnosis. Alyson, thank YOU for sharing the story of your illness. Somehow, it always makes me feel comforted to know that there are women out there who are also facing these rare illnesses and have overcome challenges that I may face in the future. P.S. I wish I was smart like you and adopted “a BFF” sooner than I did. It has been so helpful :)

    • http://twitter.com/AvgGirlsGuide The Avg Girl Guide

      Kara: wow, hearing your story, too, makes me feel more comforted as well, knowing we’re not alone. I’ve been fortunate to meet one other woman with TM, which needless to say formed an instant bond. So incredible that plasmapheresis completely restored your vision… I absolutely cannot imagine how scary that time in your life must have been, and am so relieved to hear that a doctor was able to put together a treatment plan that saved you in such a significant way. All of this is so terrifying, and finding doctors who know and understand how best to treat is an ongoing challenge. So glad you’re going better, SO glad, and I’m thrilled you also found a BFF. So helpful. :) Thanks for commenting here… your note really touched me. xo

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